Kawasaki Concours Forum
Mish mash => Open Forum => Topic started by: DC Concours on June 22, 2021, 02:06:53 PM
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Any of you ladies and gentlemen have asthma? What meds do you use to control or alleviate it.
I.e., Advair, albuterol inhaler, etc. What works for you?
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Any of you ladies and gentlemen have asthma? What meds do you use to control or alleviate it.
I.e., Advair, albuterol inhaler, etc. What works for you?
I have had asthma (and fairly severe allergies) essentially my entire life. It was much worse as a child (including a few hospitalizations). When I was young, albuterol was not commonly available or used, unfortunately, since that would have changed my life significantly.
As an adult, I have been on half-dose of Montelukast for many years, which is excellent at helping to prevent allergic (and to some degree exercise/temp-related) triggered asthma events. It also helps significantly with chronic sinus congestion, because it also acts as an antihistamine. It is cheap, generic, apparently very safe, has no side-effects (that I can tell), and is only 1 pill a day. I can ramp to a full dose when necessary. So I highly recommend it.
I have albuterol with me at all times, as do most asthmatics. But I rarely have to use it. Perhaps only once every few months. I would say my asthma is "well controlled." Advair (and the like) is usually reserved for more serious cases and when control cannot be maintained by other means. It is extremely expensive, and somewhat dangerous.
As for allergies- I had immunotherapy ("allergy injections") for several years as a child, and started again about 10 years ago as an adult (one injection in each arm, every 4 weeks). Expensive and somewhat painful and inconvenient, but it does seem to help, and is quite safe. When allergies flare, nothing is more safe or effective than Fexofenadine which I use [only] when needed (there probably are very few antihistamines I haven't tried in my life). I also use Flonase regularly (unless the nose bleeds start) and saline nasal washing.
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Thank you maxtog for your thoughtful and detailed response.
I have been having breathing issues since covid last summer. I was hoping I would be better by now.
I started off with some antihistamine pills (don't remember the name) + albuterol nebulizer and inhaler, now I am on Advair and inhaler. I am still having issues and cannot seem to get full relief. I cannot jog/run as I used to in the past and I cannot eat a bunch on sundays and sit around. I get asthma from eating too much!
I was seeing if there were other inhaled meds some here found useful. My doc is going to try another inhaled corticosteroid.
And a formulation similar to Advair is now available (cheaper). Talk to your doc about generic Airduo (Fluticasone/Salmeterol). I still use Advair due to the higher dosage needed.
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I have been having breathing issues since covid last summer. I was hoping I would be better by now. I started off with some antihistamine pills (don't remember the name) + albuterol nebulizer and inhaler, now I am on Advair and inhaler. I am still having issues and cannot seem to get full relief. I cannot jog/run as I used to in the past and I cannot eat a bunch on sundays and sit around. I get asthma from eating too much!
Are you sure you have asthma? There is a specific "challenge" test that is required for a proper diagnosis- usually only performed by an allergist or pulmonologist (not just a general practitioner). I ask because something like Montelukast will likely not be helpful if it is some other condition (like COPD, fibrosis, infection, etc).
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Sounds more like Long-Covid than Asthma to me.
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The doctor did not do any challenge test on my lungs last year because they wanted to let the lungs heal, I was very asthmatic anyway and they assumed it was covid related b/c I never had this problem before. They did perform a bunch of blood tests.
Brief synopsis. Last summer I got covid. Within days I had severe shortness of breath and had to go to the hospital to clear my lungs. Talk about being scared to death. With all the ventilator talk right around then, I was afraid I was going to get on one and die. Luckily they were able to clear my lungs, I was sent home with bronchodilators and inhaled steroids.
I am sure my doc will do other tests but she says this is common with many covid people. And it turns out that some end up with asthma for life! I just need to control it.
This is where I am. Looking for alternate meds that may have worked for you guys.
Are you sure you have asthma? There is a specific "challenge" test that is required for a proper diagnosis- usually only performed by an allergist or pulmonologist (not just a general practitioner). I ask because something like Montelukast will likely not be helpful if it is some other condition (like COPD, fibrosis, infection, etc).
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I hope not boomer. That will suck. I hear horror stories of people having all sorts of issues with their health. So far it is my lungs. Hopefully, I get well and I can put this all behind me.
Sounds more like Long-Covid than Asthma to me.
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This is where I am. Looking for alternate meds that may have worked for you guys.
It does sound like you have other issues besides just asthma. I believe the small percentage of people with long-term COVID-19 after effects is usually due to an auto-immune reaction (over-reaction) and in most cases the damage is slowly healed but can take several months. This is not restricted to just COVID-19, many non-novel flu virii can elicit similar things for some people, like loss of smell, lung damage, etc.
I hesitate to mention this, but you did ask. There is a supplement called Ridgecrest Herbals "ClearLungs Extra Strength" and, believe it or not, it does seem to help. I have used it occasionally when in a bad way, and was surprised to find some efficacy. But supplements like that (with Chinese herbs and such) tend to scare me, and would not be something I would take frequently or for long.
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I hope not boomer. That will suck. I hear horror stories of people having all sorts of issues with their health. So far it is my lungs. Hopefully, I get well and I can put this all behind me.
I hope not too.
A neighbour had Covid in April 2020 and is still struggling with his breathing now.
He has recently been on lung training physio which is helping to expand his lungs and his breathing is getting better, but it's a slow process.
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Thanks Maxtog. I will look into you herbal remedy.
I know this lovely older Indian lady who after my covid infection started giving me all sorts of herbs/spices to drink with tea/coffee/juice and cook with like cardamon, coriander, safron and other stuff I can't pronounce. I know from my doc that these have been proven to protect from cancer, strengthen the immune system etc. I haven't had any direct help with my lungs though, but I am appreciating Indian herbs and spices if not for their immediate healing effects but their wonderful taste in foods.
I was looking for different inhalers you guys may have used. There are a bunch on my market for all sorts of breathing problem. Mine seems to be a classic inflammation of the lungs. My doc will recommend new meds if I ask so I was running it by you guys incase there were any better ones I could try. Doc did do a test for autoantibodies and such but the findings were inconclusive. What was discovered after a PFT was that I did show "clinically significant??" reduction in diffusion rate. We are waiting to see if I get that back over time. Next test is in a few months.
It does sound like you have other issues besides just asthma. I believe the small percentage of people with long-term COVID-19 after effects is usually due to an auto-immune reaction (over-reaction) and in most cases the damage is slowly healed but can take several months. This is not restricted to just COVID-19, many non-novel flu virii can elicit similar things for some people, like loss of smell, lung damage, etc.
I hesitate to mention this, but you did ask. There is a supplement called Ridgecrest Herbals "ClearLungs Extra Strength" and, believe it or not, it does seem to help. I have used it occasionally when in a bad way, and was surprised to find some efficacy. But supplements like that (with Chinese herbs and such) tend to scare me, and would not be something I would take frequently or for long.
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What is this lung training thing you speak of? Does it have a medical name? Is it for people who have damaged lung tissue and therefore now have large scar tissue which is being "stretched" with exercise? I don't know of this physio. But I am interested to learn.
My breathing is "ok" but it's the random inflammation hits I get with no rhyme or reason. It can happen if I eat a bunch, or while driving on an empty stomach or watching TV or walking. I can be fine one minute and the next minute I am wheezing. Funny thing is it doesn't bother me "too much" when I run or fast walk. When my lungs are under stress I seem fine. It is when I am resting!
Asinine.
I hope not too.
A neighbour had Covid in April 2020 and is still struggling with his breathing now.
He has recently been on lung training physio which is helping to expand his lungs and his breathing is getting better, but it's a slow process.
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My neighbour is using the Pursed Lips exercise but there are quite a few different exercises out there.
https://www.medicalnewstoday.com/articles/323787#interval-training
Essentially you are improving the ability of your lungs to exchange oxygen into your blood and CO2 out of your blood.
Covid can cause permanent damage to your lungs that reduces the efficiency of these gas transfers.
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Thank you Boomer. I really didn't know about lung exercises. But I now recall my HS coach talking about breathing exercises for runners and swimmers. That was a long time ago and I didn't pay much attention.
My doc told me lung damages have to heal themselves and there are no medicines to directly help with the healing other than bronchodilators and steroids to alleviate symptoms and give comfort.
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My doc told me lung damages have to heal themselves and there are no medicines to directly help with the healing other than bronchodilators and steroids to alleviate symptoms and give comfort.
This is true.
The exercises are a therapy to stretch out capacity some to help compensate. No device is needed, however, it can be helpful. This is an example: https://www.amazon.com/gp/product/B0071IB3B4 doesn't seem to be sold on Amazon any longer, though. But there are lots of similar devices at the bottom, such as https://www.amazon.com/Breather-Inspiratory-Expiratory-Respiratory-Trainer/dp/B00FE8N7Y4
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There's much to be said about herbal/teas/excercises and other non-mainstream treatments for medical problems, I go to a DO instead of an MD as he is more receptive to non-mainstream treatments. Your friend may well be onto something, sounds like she knows a few things, it never hurts to try new things, and also remember to believe in your body and it's ability to heal and stay positive. I hope you find a correct DX and a treatment that works, good luck and keep us posted.
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Thank you Maxtog and Boomer for the lung exercises. I printed one of these apparatus out and faxed it to my doc earlier (she is old fashioned) with a note whether it will help and if I should wait till after my next PFT (in a few weeks).
I must say you guys know a lot about lung therapy. Maxtog, have you tried Xolair shots? Or the like? Did it help?
This is true.
The exercises are a therapy to stretch out capacity some to help compensate. No device is needed, however, it can be helpful. This is an example: https://www.amazon.com/gp/product/B0071IB3B4 doesn't seem to be sold on Amazon any longer, though. But there are lots of similar devices at the bottom, such as https://www.amazon.com/Breather-Inspiratory-Expiratory-Respiratory-Trainer/dp/B00FE8N7Y4
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Thank you for your well wishes. Breathing is so underrated until you can't breathe anymore.
DOs are great. They can write scripts and do everything like an MD but have the added benefit of training in wholistic therapy. I don't know if my doc is an MD or DO.
I think if my issue is uncontrolled inflammation of the lungs, a better general diet would help but I believe I will still need some hard pharma to control it. At least for now.
There's much to be said about herbal/teas/excercises and other non-mainstream treatments for medical problems, I go to a DO instead of an MD as he is more receptive to non-mainstream treatments. Your friend may well be onto something, sounds like she knows a few things, it never hurts to try new things, and also remember to believe in your body and it's ability to heal and stay positive. I hope you find a correct DX and a treatment that works, good luck and keep us posted.
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Maxtog, have you tried Xolair shots? Or the like? Did it help?
Xolair is extremely expensive and can be somewhat risky (it can suppress the body's ability to fight cancer). It is also only meant for those with not well-controlled asthma on more traditional treatments. So no, I have no experience with it. Also, I am not sure it will be helpful in primarily inflammation cases (presumably what you are dealing with) since it targets allergy-induced asthma (IgE related).
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Yer welcome DC. My Dad has really bad Asthma so I learned about it from an early age. On occasion I had to sit behind him and assist with his breathing (similar to Heimlich) but only when it got so bad that he turned blue and only until the ambulance arrived with oxygen. They finally got on top of it with allergy testing and he now manages it by avoiding the triggers. He still uses a CPAP today and is never more than a few steps away from his inhalers.
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I am glad to hear your dad has this under control. Drowning in one's lungs above land is miserable.
I now realize how many of us, even health conscious persons take our bodies for granted. The time I spent in the hospital gasping for air and having all this sh!t down my mouth; and all this fucking talk about ventilators did scare the crap out of me.
I am still surprised how this virus brought a healthy man to his knees. I never smoke, eat well, and run miles and miles every week. I have not satisfactorily run for over a year. I have these random asthma attacks out of the blue with no triggers. This infection really is no joke. It has damaged my lungs and my daily living. All within 5 days of infection.
Yer welcome DC. My Dad has really bad Asthma so I learned about it from an early age. On occasion I had to sit behind him and assist with his breathing (similar to Heimlich) but only when it got so bad that he turned blue and only until the ambulance arrived with oxygen. They finally got on top of it with allergy testing and he now manages it by avoiding the triggers. He still uses a CPAP today and is never more than a few steps away from his inhalers.
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Maxtog and Boomer. I don't need a doctor if I have you guys.
I was reading about Xolair on an asthma forum and wanted to see if you took it. That guy had great success but he did have triggered asthma. Of course any meds I want will all have to go through my doc but it helps to be educated before asking.
After spending a couple of months on these forums I now have an associates degree in asthma therapy! But none really define my problem. Most of you have triggers. I do not. Mine is random. Many on covid long haul forums talk about this un-triggered asthma like lung behavior. Their docs are at a loss too and are chalking it off to an autoimmune like disease or non-allergic asthma which is known to happen with other respiratory illnesses (I didn't know that). These however are too broad and catch all buckets.
I wouldn't mind if I had a trigger at least I would know what to watch out for. Otherwise it is just absurd. I could choke and die in my sleep. WTF.
Thanks for listening to my rant. I just had a minor attack this morning. 6 inhalation of the inhaler allevioated it. I am working from home, and I didn't do anything different from last morning or the morning before that or before that. And my desk was clean with no papers, dust or lint. This is fucking absurd. How do you live with asthma ?
Xolair is extremely expensive and can be somewhat risky (it can suppress the body's ability to fight cancer). It is also only meant for those with not well-controlled asthma on more traditional treatments. So no, I have no experience with it. Also, I am not sure it will be helpful in primarily inflammation cases (presumably what you are dealing with) since it targets allergy-induced asthma (IgE related).
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How do you live with asthma ?
Well, classic asthma doesn't present like what you describe. It is usually triggered by known and specific things, these three being the most common:
1) Allergens (usually known ones, and typically environmental)
2) Breathing irregularities (like extended hard laughing, sudden extreme exertion, or coughing)
3) Radical temperature changes
So those things are usually easily avoided, and if triggered, usually quickly resolved by using albuterol and resting until it passes. There is also usually "notice" that it is starting to happen. I don't know what it is like to NOT have asthma, since I have had it my whole life. And I am glad mine is well-controlled. For those with not-well-controlled, the symptoms can come on more quickly and/or are harder to resolve and/or take longer to resolve. In some cases, the allergen is unknown or can't be avoided, and more aggressive and continuous treatment has to be taken.
I have other health conditions that are far more irritating and problematic that happened later in life. So to me, being asthmatic is not a big deal. It only becomes a major issue if it complicates some type of OTHER respiratory issue- like being sick with pneumonia (had that only once, thank god), or a respiratory flu/cold. In those cases, the infection can trigger an asthma reaction that can't be easily resolved without resorting to more powerful measures (like fluticasone and salmeterol and similar). Fortunately, I very rarely get sick.
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Dads triggers are pretty everyday items and are easy to avoid.
Most other asthmatics I know of are similar.
It sounds to me like something else is going on with you.
https://www.everydayhealth.com/lung-respiratory/asthma/know-when-you-have-asthma/
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I agree with Boomer, it could be Covid related...
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You mention your running is affected. And also after eating. This makes me think it could be more related to anemia.
My armchair theory of one possibly overlooked outcome of covid is based on the increased oxidative stress load depleting antioxidant levels. Methyl donors (folate, vitamin B12, and choline, etc.) have been observed to be associated with asthma. It has also only recently been discovered that those also act as antioxidants. Other viruses have been known to deplete B12 specifically. These are also essential nutrients to produce red blood cells and hence could cause anemia following depletion.
I would consider the Colgan blood boosting formula or something like that. It more mentions B6 and low B6 may be associated with asthma.
https://www.serpentine.org.uk/pages/advice_frank04.html
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Thank you ginzburg. I will ask my doc to see if she had done full panel blood tests on vits and minerals. They did take a bunch of blood in Jan to do a barrage of tests. I was deficient in vit D, but that was all. Do they normally do B12 tests for guys? I always hear women complaining about B12.
Strangely enough I have recently reduced my use of Albuterol substantially and I am maintaining well on Advair. Dumb.
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Maxtog, did you get any of the pneumonia shots?
My doc gave me the Pneumovax 23 shot due to the irregularities in my lungs... to protect me from other infections.
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It only becomes a major issue if it complicates some type of OTHER respiratory issue- like being sick with pneumonia (had that only once, thank god), or a respiratory flu/cold. In those cases, the infection can trigger an asthma reaction that can't be easily resolved without resorting to more powerful measures (like fluticasone and salmeterol and similar). Fortunately, I very rarely get sick.
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Maxtog, did you get any of the pneumonia shots?
I definitely wouldn't want to be given pneumonia via injection :) But, seriously, I know you mean pneumonia vaccine... and no, I have never had a pneumonia vaccine injection. It was never offered or suggested to me, but I would seriously consider it, if it were.
My doc gave me the Pneumovax 23 shot due to the irregularities in my lungs... to protect me from other infections.
Probably prudent. Pneumonia vaccines are not much talked about, but are often offered to the elderly (over 65), and those with high risk factors for serious pulmonary complications. There are two, PCV13 and PPSV23, you received the more potent of the two. Either will protect for at least 5 years.
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I'm eligible for the pneumonia vaccine. Planning on getting that soon.
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You definitely should. I didn't have any reaction at all.
Anything to keep your lungs healthy. Very underrated. Pneumonia is a huge problem as one ages. I remember my mom got the vax years back. Didn't think much of it. I am still decades away from the age requirement for this vax but was given one last year. Ask your doc about getting both. And there is a new one too. There are time requirements between the 13, 20, and 23 which I will explain below.
I'm eligible for the pneumonia vaccine. Planning on getting that soon.
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You should ask your doc for it. Fresh out of the hospital, my doc told me to come in after a month to get a shot. She said it was a for my lungs, and she had me at lungs. No further explanations needed. I got it. She gave me the 23 variant. I learned from speaking to my friend who is getting his 23 today that there were other vaccine variants as well. He did say there was a new 20 variant and the old 13 that can also be given. There is usually a mandatory one year wait time needed between the 13 and 23. I will talk to the doc about getting the 13 and 20 if they are beneficial. Don't know if the 20 variant is 13+(7 new) or entirely new. I'll research this some more.
I tell you what, if anyone has ever gone to the hospital drowning in their own lungs and had to have sh!t sucked out of their lungs with 2ft tubes down their throats, and 2x 10" needles stabbed right into both lung lobes all while awake... you will never be as cavalier about any respiratory disease ever again. And this from a young, healthy, lifelong runner who had no worries about health whatsoever. And frankly didn't worry that much about covid either.
Get the pneumonia vax guys. Especially when there is a disease attacking the lungs. We should all give our lungs a little more care during times like this. I have a new found love for my lungs. I wish I had been better acquainted with them decades ago.
I definitely wouldn't want to be given pneumonia via injection :) But, seriously, I know you mean pneumonia vaccine... and no, I have never had a pneumonia vaccine injection. It was never offered or suggested to me, but I would seriously consider it, if it were.
Probably prudent. Pneumonia vaccines are not much talked about, but are often offered to the elderly (over 65), and those with high risk factors for serious pulmonary complications. There are two, PCV13 and PPSV23, you received the more potent of the two. Either will protect for at least 5 years.
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I had pneumonia only once in my life. I don't remember my exact age, but it was school-aged. Perhaps somewhere between 10 and 14. Anyway, I DO remember what it felt like. Every breath was pain, a stabbing in my left side. It was very much not fun. Wasn't hospitalized, just powerful antibiotics and it took quite a while to overcome.
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I am glad you told me they only last 5 years. Thank you. Didn't know about that. I assumed they lasted many years like the dtap or hep vaccines.
I will be putting that on my calendar. No more avoidable cardiopulmonary diseases. This sh!t is not going to happen over a $10 pharmacy copay vaccine. F*ck that.
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It could last longer. Depends on your immune system.
Next thing I need to look into is shingles. My Mom got it twice now, and by her reports, very non-fun both times. They lowered the recommended vaccination age for that not long ago.
There are no limits to the things out to get us.
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My mom got 2 kinds of shingles vax. The old kind and the new kind. They gave her the old one many years ago. I don't remember if it bothered her then.
Her doc gave her the new kind soon after it came out a few years back. It was a 2 shot series and it was not easy. She had a fever and terrible aches and pains. It subsided within 5 days though. Still better than getting the shingles.
If your mom got the old kind first, that may be why she had a hard time with the new one. The new shingles vax likely elicited a stronger response due to the old vax primed in her. Maybe.
It could last longer. Depends on your immune system.
Next thing I need to look into is shingles. My Mom got it twice now, and by her reports, very non-fun both times. They lowered the recommended vaccination age for that not long ago.
There are no limits to the things out to get us.
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Yes, I have heard it is a rough series, so I guess one should plan accordingly.
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Well maxtog, I am sure you know this. But CDC has a great pamphlet on regular vaccine schedules.
If anyone is interested...https://www.cdc.gov/vaccines/schedules/downloads/adult/adult-combined-schedule.pdf